This booklet has been designed for family or friends providing support for someone living with dementia who is experiencing difficulties with eating and drinking in the later stages. of Dementia. This booklet may help you to make decisions, provide care, plan for future care, and it may also help to guide discussions with health professionals. You may not want to read all of this information at this time but might wish to come back to this booklet at a later time.
Enabling a 'gold standard' of care for all people nearing the end of life
Sets out a vision for public health. Includes profiles which are a source of indicators across a wide range of health and well being themes. Indicators can be browsed at different geographical levels.
This tool has been designed to help health and social care professionals identify those who would benefit from a palliative approach to their care. Earlier identification has many advantages. It can allow people to make informed choices about what medical treatments and care they would like to receive, or not receive, and to prioritise things that are important to them when length of life may be short, or when the presence of irreversible illness has altered life for that person.
There is an excellent guide here to help families, friends, volunteers or generalist clinicians without experience of caring for a person who is dying to support someone dying at home - From the Helix Centre working with Central North West London NHS Trust who have developed it
This combined mobile app and website aim to support healthcare professionals, patients and carers to make shared decisions about medicines, based on the Scottish Government's Polypharmacy Guidance: Realistic Prescribing, 3rd edition.
Patients with diabetes who are at the end of life, have a unique set of care needs, including those relating to health and social care. However end-of-life diabetes care has been recognised as an area lacking quality standards and guidance on best clinical practice. This is the third edition of this guidance, which aims to summarise a consistent but high-quality approach towards end-of-life care for people with diabetes by providing a series of clinical care recommendations. The documents have been endorsed by leading diabetes organisations including: NHS England, ABCD, TREND-UK, diabetesFrail, National Diabetes Nurse Consultants, PCDS and the RCN.
Beacon has been commissioned to provide an information and advice service across England. Information and advice is accessible in the form of free and comprehensive written guidance, and individuals are also able to access up to 90 minutes of free advice with a trained NHS continuing healthcare adviser.
An award winning website from Wales, but also applicable to England. It provides a number of resources for patients, carers and professionals to help everyone understand CPR, DNACPR and the importance of talking about these issues. (CPR= Cardio-Pulmonary Resuscitation and DNACPR is Do Not Attempt CPR, or in other words allowing a natural death without attempting to restart the heart after death)
This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. Also available as an audiobook.