The Secretary of State for Health asked the National Data Guardian to develop a consent/ opt-out model which makes it absolutely clear to patients/users of care when health and social care information about them will be used and in what circumstances they can opt out. This report addresses the question of what more can be done to build trust in how the NHS and social care services look after people’s con dential data and use it appropriately.

Malcolm and his wife kindly agreed to share their positive experience of the process and you can watch their story here. Please note that the first 2 minutes are Lincolnshire health professionals discussing their thoughts about the ReSPECT roll out.